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Saving Babies?The Consequences of Newborn Genetic Screening$
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Stefan Timmermans and Mara Buchbinder

Print publication date: 2012

Print ISBN-13: 9780226924977

Published to Chicago Scholarship Online: September 2013

DOI: 10.7208/chicago/9780226924991.001.0001

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PRINTED FROM CHICAGO SCHOLARSHIP ONLINE (www.chicago.universitypressscholarship.com). (c) Copyright University of Chicago Press, 2019. All Rights Reserved. An individual user may print out a PDF of a single chapter of a monograph in CHSO for personal use.date: 18 October 2019

Does Expanded Newborn Screening Save Lives?

Does Expanded Newborn Screening Save Lives?

Chapter:
(p.182) chapter six Does Expanded Newborn Screening Save Lives?
Source:
Saving Babies?
Author(s):

Stefan Timmermans

Mara Buchbinder

Publisher:
University of Chicago Press
DOI:10.7208/chicago/9780226924991.003.0007

This chapter turns to the lifesaving promise underlying newborn screening. Our starting point is the presumption that newborn screening does not save lives by itself. In the most fortunate of circumstances, newborn screening offers an opportunity for saving lives, but making a difference in health outcomes depends on a mixture of luck and hard work. Complicating causal narratives about newborn screening’s lifesaving potential, it is argued here that the window of opportunity to save lives may close prematurely due to remaining inequities in the US healthcare system. The study design utilized in this chapter, in an effort to avoid misunderstandings, does not allow the evaluation of the extent to which newborn screening has saved lives; answering such epidemiological questions would require a different methodology.

Keywords:   health outcomes, luck, hard work, causal narratives, lifesaving potential, US healthcare system, epidemiological questions

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